ea0085oc8.4 | Oral Communications 8 | BSPED2022
Thakrar Sejal
, Turner Catherine
, Guglieri Michela
, Johnson Alex
, Wong Sze Choong
Objectives: DMD Care UK (www.dmdcareuk.org) is a national project initiated and funded by Duchenne UK in collaboration with Newcastle University and the UK North Star clinical network. The main aim is to facilitate implementation of care standards across the UK national health system. In 2021, DMD Care UK conducted a comprehensive online family survey of all aspects of care of boys with DMD with the aim of capturing the patients experienc...